I live in a box. You can’t see my box. Actually it isn’t physically there but I carry it around with me, as it is part of my life. How do I mean? Well the box is called Wolfram Syndrome. It is a rare neurologically degenerative condition (1/700 births about 70 people in the country) that causes a reduced life expectancy.
I have recently had my autobiography “Living in a box” published by Moorley’s Print and Publishing and I have already sold 200 copies. My autobiography covers my life before I was diagnosed with the condition, how I cope with it, special holidays I have been on, graduating twice and about my late brother Alex who also had the condition.
My book is available on Amazon and Moorleys website for £6 and the proceeds go directly to Wofram syndrome UK towards the research fund.